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Rhett Lamb is often cranky like any other 3-year-old toddler, but there’s one thing that makes him completely different: he has a rare medical condition in which he can’t sleep a wink.
Rhett is awake nearly 24 hours a day, and his condition has baffled his parents and doctors for years. They took clock shifts watching his every sleep-deprived mood to determine what ailed the young boy.
After dozens of doctors' visits and years of conflicting opinions, Rhett was finally diagnosed with a rare brain condition called chiari malformation.
Chiari malformation is a neurological disorder in which the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine, causing a number of symptoms, including sleeplessness.
Once diagnosed, doctors were able to perform a risky surgery that offered a 50-50 chance Rhett would be able to sleep normally for the first time.

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Monday, December 13, 2010

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